iPeace Members with Disabiling Health Issues- How Many Are We & Don't talk About It ?
*This is a discussion I wrote on my profile page in July. I have some really interesting replies to it there if anyone is interested in reading~please go to my page. I would love to have some feedback from this group. Thanks and smile...
I wonder, as I go from page to page,meeting new people-making friends, just how many like me are dealing with disabeling health issues? Whether it be ourselves or a family member,and why we rarely talk about it ? I know why I don't.Not here or other social sites.As I go about telling more about me and learning about others. I often know,whether they tell me or not,that like me,they are dealing with health issues that have become disabeling, limiting abilities to physically participate in life outside our homes. Sitting or lying down as I do in front of our computers,participating in life from our homes or bedroom as I do. Not discussing this to anyone else,rarely- if ever. Feeling like a "cyber" person.
Because most all our lives are spent online, our activities are almost, or all online.Our social life is online. Here on iPeace (and other sites).
I have been an activist/advocate &community organizer for nearly 20yrs now.Since Feb. 2007 unable to work. Since last summer i've only been able to do so online. As it became increasingly more difficult over the years I had to cut back on my activities. By 2001 only able to work part time for a local non profit. I still continued as volunteer for other non profits on a more limited level. It was heartbreaking,frustrating and depressing. I found much I could do from my home,my bed online,getting more and more involved as a cyber activist. In Oct,2008 I found iPeace(from facebook) and soon after became my home.The few times I did open up and answer questions from new friends here,as we go about getting to know each other better- soon after telling more about my health issues,they were never to be heard from again. Why, you may ask? Why, I asked myself? I suppose is because they don't know what to say? I suppose is not due to not caring,but because possibly they do care causing akwardness in wanting to help,say the right thing..but not knowing what that is ?.I honestly don"t know? ..But I prefer to think that my "new friend" or already a friend ,that is someone I became close to, that had asked a question which led to needing to explain limitations, didn't dissapear due to not caring but not knowing what to say. I don't know? I rarely ever mention,nor want to talk about my health issues. The fact is whether or not I am correct in reasons those friends never reply & disappear after I answer further inquiry into my health issues,it still hurts. I tell myself it doesn't matter,but it does. I tell myself they don't intend to be hurtful,but it still hurts.
To All here on iPeace: with or family members dealing with disabling health problems please come here to this discussion. Share with me and each other why you think :
1) We don't talk about it.
2) After we do friends,people dissappear.
and in our efforts for world Peace,inner Peace,to help make this a better world. Do you think it really matters that we don't talk about our disabling health issues?
I wonder, as I go from page to page,meeting new people-making friends, just how many like me are dealing with disabeling health issues? Whether it be ourselves or a family member,and why we rarely talk about it ? I know why I don't.Not here or other social sites.As I go about telling more about me and learning about others. I often know,whether they tell me or not,that like me,they are dealing with health issues that have become disabeling, limiting abilities to physically participate in life outside our homes. Sitting or lying down as I do in front of our computers,participating in life from our homes or bedroom as I do. Not discussing this to anyone else,rarely- if ever. Feeling like a "cyber" person.
Because most all our lives are spent online, our activities are almost, or all online.Our social life is online. Here on iPeace (and other sites).
I have been an activist/advocate &community organizer for nearly 20yrs now.Since Feb. 2007 unable to work. Since last summer i've only been able to do so online. As it became increasingly more difficult over the years I had to cut back on my activities. By 2001 only able to work part time for a local non profit. I still continued as volunteer for other non profits on a more limited level. It was heartbreaking,frustrating and depressing. I found much I could do from my home,my bed online,getting more and more involved as a cyber activist. In Oct,2008 I found iPeace(from facebook) and soon after became my home.The few times I did open up and answer questions from new friends here,as we go about getting to know each other better- soon after telling more about my health issues,they were never to be heard from again. Why, you may ask? Why, I asked myself? I suppose is because they don't know what to say? I suppose is not due to not caring,but because possibly they do care causing akwardness in wanting to help,say the right thing..but not knowing what that is ?.I honestly don"t know? ..But I prefer to think that my "new friend" or already a friend ,that is someone I became close to, that had asked a question which led to needing to explain limitations, didn't dissapear due to not caring but not knowing what to say. I don't know? I rarely ever mention,nor want to talk about my health issues. The fact is whether or not I am correct in reasons those friends never reply & disappear after I answer further inquiry into my health issues,it still hurts. I tell myself it doesn't matter,but it does. I tell myself they don't intend to be hurtful,but it still hurts.
To All here on iPeace: with or family members dealing with disabling health problems please come here to this discussion. Share with me and each other why you think :
1) We don't talk about it.
2) After we do friends,people dissappear.
and in our efforts for world Peace,inner Peace,to help make this a better world. Do you think it really matters that we don't talk about our disabling health issues?
Replies to This Discussion
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Permalink Reply by Leah D (Pixie) on
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thank u gunilla, I am sorry that u have so much pain :(
I have wondered the same thing myself,gunilla..if i did something(s) terrible in past life/lives for so much difficulty & pain in this life??
something else to ponder about..:) -
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yes my friend I do agree on all u wrote here( 'cept the kittens part :D).. is 1 of the varied and many things i ponder about..lots of theories on lots of subjects,always the questioning mind..some things I do know as fact,to me anyway. I do believe in reincarnation,not so much in the "punishment for misdeeds" stuff tho.
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Permalink Reply by gunilla caisson on
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I do not know what to think. But did I throw a kitten in the river to drownI have myself to blame In that life. Why be punished some lives later :) I do not buy that.
A sin is a sin only if you are aware that you have comitted it...or the society in the time you live judge it so... -
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That I did not quite follow. You have to help me a little to understand...
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What to say? More then that I`m happy that English in not my language. Give me a good excuse for not understanding :)
But making us confuse...that`s a part of your charm Sailor *smile' -
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lol, yup i agree too..gunilla,joni..wang/sailor my friend,usually i understand u perfectly..me confused too..lol on the Frodo and Gandolf's um conversation,comment..;)
joni...the ring picie is kewl! & I'm with U on leavin that 1 alone,LOL..:)
Gunilla,good to see your words..I've not had a lot of time be online,yesterday I was ill..hands all swollen up 2,couldn't manage typing or reading...
hugs all x -
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Now I`m really worried. I did not see that Sailor wrote in Swedish. and suddenly i see that i have wrote my comment in Swedish. My God I`m loosing it :)
What`s the name of that illness? *smile* -
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Now the mystery is solved. Why was all my comments in swedish and my family name changed to Brokista? I thought i was hijacked
IT WAS MY HUSBAND. he had changed the settings to translate this page to Swedish and they also translated my name ...my God how could I know..
My poor husband is not very popular for the moment :)
and I have been so confused ...Thought i had gor crazy. I wrote in english but my comments was in swedish..
No i want to leave this behind me and forgive me all of you I have bothered with emails and so on...
One day i maybe can laugh at this but not right now
But one thing is good. I`m not crazy :) -
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Nothing to forgive my friend..glad mystery solved..and nope you not crazy, er well only in the good way..that we all are here ,lol :)
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But that was really scary..Will take some time to process.. That terrible confusion I felt...
My God...
I felt so stupid... I have deleted some of these in others eyes confused comments I wrote.
Where i apologized for not having seen that you wrote in Swedish...Imagine...
This night I will have night mares about confusion *smile* -
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Today i laugh too :) But glad you didn`t meet me yesterday..
But now He is forgiven *smile' and life goes on...haha... -
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That is good Devi..that you have people at work who take care of you and you being good to yourself too..
it helped me a lot when I could still work to have good friends at work,looking after me,but it also was hard on me cuz I knew they cared about me and it hurt them to see me in pain or struggling to walk with out falling..so sweet sis Devi I am sorry you dealing with flare up.. i am now too.. so hard to type..
Yes please take good care of your self and never forget we are always here to listen if you just wanna talk..vent..what ever you need..
hugs & luv you Sis x -
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