iPeace Members with Disabiling Health Issues- How Many Are We & Don't talk About It ?
*This is a discussion I wrote on my profile page in July. I have some really interesting replies to it there if anyone is interested in reading~please go to my page. I would love to have some feedback from this group. Thanks and smile...
I wonder, as I go from page to page,meeting new people-making friends, just how many like me are dealing with disabeling health issues? Whether it be ourselves or a family member,and why we rarely talk about it ? I know why I don't.Not here or other social sites.As I go about telling more about me and learning about others. I often know,whether they tell me or not,that like me,they are dealing with health issues that have become disabeling, limiting abilities to physically participate in life outside our homes. Sitting or lying down as I do in front of our computers,participating in life from our homes or bedroom as I do. Not discussing this to anyone else,rarely- if ever. Feeling like a "cyber" person.
Because most all our lives are spent online, our activities are almost, or all online.Our social life is online. Here on iPeace (and other sites).
I have been an activist/advocate &community organizer for nearly 20yrs now.Since Feb. 2007 unable to work. Since last summer i've only been able to do so online. As it became increasingly more difficult over the years I had to cut back on my activities. By 2001 only able to work part time for a local non profit. I still continued as volunteer for other non profits on a more limited level. It was heartbreaking,frustrating and depressing. I found much I could do from my home,my bed online,getting more and more involved as a cyber activist. In Oct,2008 I found iPeace(from facebook) and soon after became my home.The few times I did open up and answer questions from new friends here,as we go about getting to know each other better- soon after telling more about my health issues,they were never to be heard from again. Why, you may ask? Why, I asked myself? I suppose is because they don't know what to say? I suppose is not due to not caring,but because possibly they do care causing akwardness in wanting to help,say the right thing..but not knowing what that is ?.I honestly don"t know? ..But I prefer to think that my "new friend" or already a friend ,that is someone I became close to, that had asked a question which led to needing to explain limitations, didn't dissapear due to not caring but not knowing what to say. I don't know? I rarely ever mention,nor want to talk about my health issues. The fact is whether or not I am correct in reasons those friends never reply & disappear after I answer further inquiry into my health issues,it still hurts. I tell myself it doesn't matter,but it does. I tell myself they don't intend to be hurtful,but it still hurts.
To All here on iPeace: with or family members dealing with disabling health problems please come here to this discussion. Share with me and each other why you think :
1) We don't talk about it.
2) After we do friends,people dissappear.
and in our efforts for world Peace,inner Peace,to help make this a better world. Do you think it really matters that we don't talk about our disabling health issues?
I wonder, as I go from page to page,meeting new people-making friends, just how many like me are dealing with disabeling health issues? Whether it be ourselves or a family member,and why we rarely talk about it ? I know why I don't.Not here or other social sites.As I go about telling more about me and learning about others. I often know,whether they tell me or not,that like me,they are dealing with health issues that have become disabeling, limiting abilities to physically participate in life outside our homes. Sitting or lying down as I do in front of our computers,participating in life from our homes or bedroom as I do. Not discussing this to anyone else,rarely- if ever. Feeling like a "cyber" person.
Because most all our lives are spent online, our activities are almost, or all online.Our social life is online. Here on iPeace (and other sites).
I have been an activist/advocate &community organizer for nearly 20yrs now.Since Feb. 2007 unable to work. Since last summer i've only been able to do so online. As it became increasingly more difficult over the years I had to cut back on my activities. By 2001 only able to work part time for a local non profit. I still continued as volunteer for other non profits on a more limited level. It was heartbreaking,frustrating and depressing. I found much I could do from my home,my bed online,getting more and more involved as a cyber activist. In Oct,2008 I found iPeace(from facebook) and soon after became my home.The few times I did open up and answer questions from new friends here,as we go about getting to know each other better- soon after telling more about my health issues,they were never to be heard from again. Why, you may ask? Why, I asked myself? I suppose is because they don't know what to say? I suppose is not due to not caring,but because possibly they do care causing akwardness in wanting to help,say the right thing..but not knowing what that is ?.I honestly don"t know? ..But I prefer to think that my "new friend" or already a friend ,that is someone I became close to, that had asked a question which led to needing to explain limitations, didn't dissapear due to not caring but not knowing what to say. I don't know? I rarely ever mention,nor want to talk about my health issues. The fact is whether or not I am correct in reasons those friends never reply & disappear after I answer further inquiry into my health issues,it still hurts. I tell myself it doesn't matter,but it does. I tell myself they don't intend to be hurtful,but it still hurts.
To All here on iPeace: with or family members dealing with disabling health problems please come here to this discussion. Share with me and each other why you think :
1) We don't talk about it.
2) After we do friends,people dissappear.
and in our efforts for world Peace,inner Peace,to help make this a better world. Do you think it really matters that we don't talk about our disabling health issues?
Replies to This Discussion
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Permalink Reply by Leah D (Pixie) on
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I have had people say this Karma philosophy towards illnesses before and honestly pissed me off, however i do believe in karma..just a bit differently. I don't however think terrible things happen to good people and children,or illness due to bad Karma. Is often misunderstood by many. Thank you erika & gunilla for discussing this. Is interesting to read your comments,
love to you both -
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gunilla ~ it means a great deal to me that you think this is a welcomed and needed discussion,
After reading/commenting on yours & others discussions here on this group that so much of our personal health struggles were discussed, I felt it appropriate to add this discussion here..thx so for letting me know you think so too..smiles back my friend :-) -
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Permalink Reply by gunilla caisson on
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Everything we have a hard time talking about is exactly what is needed to ventilate, This that comes easily, that`s just to amuse ourselves...:) -
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Yes my friend, I agree completely. We need a safe & understanding place to discuss life's troubles and a place to shine&smile.
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For All my dear friends here :-) much love & many Thank yous x -
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Yes everything has its time and place..*smile*
You have something...:) Hard to put my finger on it, but i like what i see.
Take good care... -
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big smiles gunilla
I have written a great deal about myself on ipeace,is scattered about the network,groups,pages,emails..sometime soon I might put it all together,hmmm perhaps. I am a very diverse unique individual with far more life experiences than many,some good some horrifc, all comes together to make me ME..U my friend are an amazing,caring,intelligent gentle soul. I am truly enjoying getting to know u better and becoming good friends,def makes me smile :-) -
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I have to take better care of my " baby" the "Child Within" So if i will be less here you know where to find me..
We are less than 200 but we are a family , which I think I have neglected by spending so much time here.
One day I hope that we all will meet there... -
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okies gunilla, um i think i joined child within?? yes perhaps can merge the groups and use discussions? so we all can be together in one spot and not wear you out going back & forth between your groups..smiles and thanks for ALL you do :-)
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I realized yesterday gunilla that your group child within is a seperate ning site,apolagies for thinking was an ipeace group..I did join another one of yours and was confused..smiles :-)
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Yes I think it became a bit confusion with the names there :) But now I have welcomed you to my network and I`m glad to have you there *smile*
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Thank you gunilla j for the welcoming me :-) ust got online few minutes ago.
600 or so emails to go threw! will get my profile pg. done tomarrow. c'u there. smiles -
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