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Comment
Dear mom (gunilla) and little sis and my online family,i have a link where you can read about Jouberts Sydrome.
http://www.joubertfoundation.com/PDFs/JS_06_26_06.pdf this link is o english and for you Mom here is a link in swedish :
http://www.socialstyrelsen.se/ovanligadiagnoser/joubertssyndrom
http://www.nimade.info/halsa/2011/06/Vad-ar-Joubert-syndrom.html
It is hard to know that my son could die tomorrow.
Life can be so unfair!
Hugs Kenneth
I am so sorry to read about your Son's illness that has been so sick so long :( I Understand how difficult it must be for you..and your family..
I do not know what is the Syndrome he has is? But my heart goes out to you & your family, am here for you Dear Brother..if you want to talk and for any support am able to give you. My thoughts are with you & sending much Love your way and healing thoughts for your Son. Please take care of you and to stay strong for your son..
love & hugs from your little Sis
It was a realy long time since i was online here.
The reason i havent wrote or been online is because my youngest son kim,
we got the answer why he is so sick.... he has jouberts syndrome .
The last 6 mounth has been a real nightmare,the doctors and his mother and i have been fighting for his life.... he must have new kidneys, but he is in so bad condtion so he should not survive the OP - table today.
Prayig every day for him!
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